Register Calendar Latest Topics
 
 
 


Reply
  Author   Comment  
DianeMcKnight

High Bronze Member
Registered:
Posts: 31
Reply with quote  #1 
DD is 13 and has Cystic Fibrosis, so she is shorter than average kids her age and a lot skinnier. She and I both know that she has to eat a lot more than other teens to maintain a healthy weight, and she has a huge appetite anyway, so she eats pretty much everything she has access to that doesn't affect her condition. Still, people who don't know about her CF come to me thinking she has an eating disorder. 

I've been doing a bit of thinking lately, and I want to start helping her eat healthy. I don't have a problem with the AMOUNT of food she consumes in a day, but I don't really like the unhealthy snacks she eats so much of. Any quick, convenient, and healthy food/meal ideas that are rather high in fat BUT have very little dairy that you would suggest?

Thanks!
1
dancedaughters

Platinum Member
Registered:
Posts: 1,682
Reply with quote  #2 
Why very little dairy?

What does her doctor recommend?
0
dancermom128

High Platinum Member
Registered:
Posts: 3,631
Reply with quote  #3 
She should be followed very closely by her doctors and nutritionists. Why isn't that happening? Why would you trust a bunch of internet strangers with something that important?
1
dncemom01

Avatar / Picture

Platinum Member
Registered:
Posts: 1,116
Reply with quote  #4 
This doesnt fit in with what you have posted in the past

 Subject: 14 yr old with weight issues?Replies: 32
 Posted By: DianeMcKnightViews: 2,382
 
Quote:
Originally Posted by compmom123
Hey so I'm looking for a little advice on this one. Dd14 is not fat- she weighs 103 lbs and is almost 5"3. She has a bmi of 18.6 However I believe that the 'all dancers must be sticks' idea is getting to her. She has started eating less, and has stopped wearing a sports bra to dance, exercising like crazy, and is always checking calories before she eats anything. A lot of the girls on her dance team are stick thin. Any mom advice on how to stop this before it gets unhealthy/ tell her she isn't fat. Thanks!


That was my dd a little while back. A friend of hers shared personal experiences with dieting and that seemed to do the trick. Maybe you could have your dd reach out to other dancers that dont have that mindset? Or you could talk to her about different dancers such as Kalani Hilliker or famous people who are more thick and muscular, but definitely not overweight. 
0
DianeMcKnight

High Bronze Member
Registered:
Posts: 31
Reply with quote  #5 
Quote:
Originally Posted by dncemom01
This doesnt fit in with what you have posted in the past

 Subject: 14 yr old with weight issues?Replies: 32
 Posted By: DianeMcKnightViews: 2,382
 
Quote:
Originally Posted by compmom123
Hey so I'm looking for a little advice on this one. Dd14 is not fat- she weighs 103 lbs and is almost 5"3. She has a bmi of 18.6 However I believe that the 'all dancers must be sticks' idea is getting to her. She has started eating less, and has stopped wearing a sports bra to dance, exercising like crazy, and is always checking calories before she eats anything. A lot of the girls on her dance team are stick thin. Any mom advice on how to stop this before it gets unhealthy/ tell her she isn't fat. Thanks!


That was my dd a little while back. A friend of hers shared personal experiences with dieting and that seemed to do the trick. Maybe you could have your dd reach out to other dancers that dont have that mindset? Or you could talk to her about different dancers such as Kalani Hilliker or famous people who are more thick and muscular, but definitely not overweight. 


I'm sorry for any misunderstanding, but what I've shared was about dd a few years back, while all the girls were still nine-eleven, hadn't reached puberty yet, and all very thin. At that time, she hadn't been diagnosed and for some reason, she thought she was fat. I thought it was just a phase, so stupidly, I didn't do anything to prevent her from trying to diet, as I thought it was healthy if it didn't go too far. After she was diagnosed with CF, we both realized that she was slowly going to become unhealthily skinny if she didn't eat more, and her doctor helped her understand that she wasn't fat. Her friend who had a bit of negative experience with dieting also helped her understand that she didn't need to loose any more weight. Hope this clears it up a bit.


0
DianeMcKnight

High Bronze Member
Registered:
Posts: 31
Reply with quote  #6 
Quote:
Originally Posted by dancedaughters
Why very little dairy?

What does her doctor recommend?


Her doctor doesn't have a lot to say about her diet, except that she has to eat more than other kids her age does. 

As for the dairy, we just figured it was common sense because dairy builds mucus. 
1
DianeMcKnight

High Bronze Member
Registered:
Posts: 31
Reply with quote  #7 
Quote:
Originally Posted by dancermom128
She should be followed very closely by her doctors and nutritionists. Why isn't that happening? Why would you trust a bunch of internet strangers with something that important?


As I've responded to someone else earlier, her doctors don't have a lot of preference on what she eats, except that she should be eating more than the average kids her age. I just wanted to know if other moms had any recipes or ideas for foods that were healthier and more convenient to take around. 
1
dancermom128

High Platinum Member
Registered:
Posts: 3,631
Reply with quote  #8 
Sorry I'm just not buying this story. You have a child with CF who isn't being followed by a nutritionist. You "assumed" no dairy? And your child had problems with her lungs but yet wasn't excused from PE. Not. Buying. It.
0
dncemom01

Avatar / Picture

Platinum Member
Registered:
Posts: 1,116
Reply with quote  #9 
Quote:
Originally Posted by DianeMcKnight
Quote:
Originally Posted by dncemom01
This doesnt fit in with what you have posted in the past

 Subject: 14 yr old with weight issues?Replies: 32
 Posted By: DianeMcKnightViews: 2,382
 
Quote:
Originally Posted by compmom123
Hey so I'm looking for a little advice on this one. Dd14 is not fat- she weighs 103 lbs and is almost 5"3. She has a bmi of 18.6 However I believe that the 'all dancers must be sticks' idea is getting to her. She has started eating less, and has stopped wearing a sports bra to dance, exercising like crazy, and is always checking calories before she eats anything. A lot of the girls on her dance team are stick thin. Any mom advice on how to stop this before it gets unhealthy/ tell her she isn't fat. Thanks!


That was my dd a little while back. A friend of hers shared personal experiences with dieting and that seemed to do the trick. Maybe you could have your dd reach out to other dancers that dont have that mindset? Or you could talk to her about different dancers such as Kalani Hilliker or famous people who are more thick and muscular, but definitely not overweight. 


I'm sorry for any misunderstanding, but what I've shared was about dd a few years back, while all the girls were still nine-eleven, hadn't reached puberty yet, and all very thin. At that time, she hadn't been diagnosed and for some reason, she thought she was fat. I thought it was just a phase, so stupidly, I didn't do anything to prevent her from trying to diet, as I thought it was healthy if it didn't go too far. After she was diagnosed with CF, we both realized that she was slowly going to become unhealthily skinny if she didn't eat more, and her doctor helped her understand that she wasn't fat. Her friend who had a bit of negative experience with dieting also helped her understand that she didn't need to loose any more weight. Hope this clears it up a bit.






It is very rare for a child to be diagnosed with CF that old. It's is not a "caught" disease but something that they are born with. The majority of people are diagnosed by age 2!! I'm sorry but I'm just not buying this story.
0
Twinkletoesx2

High Platinum Member
Registered:
Posts: 3,990
Reply with quote  #10 
I agree, something seems fishy. If your dd has such a serious condition and you are worried about her nutrition, why not make an appointment with a nutritionist instead of asking here? Even a simple search on Google returns lots of great info on nutrition for teens with CF. If this is for real, I suggest you #1 take her to a different pediatrician #2 take her to a nutritionist. I find it hard to believe her doctor would not have much to say about her nutrition or what she could eat to help her gain weight. None of this sits right...
0
4boysmom

Platinum Member
Registered:
Posts: 2,230
Reply with quote  #11 
Quote:
Originally Posted by dncemom01
Quote:
Originally Posted by DianeMcKnight
Quote:
Originally Posted by dncemom01
This doesnt fit in with what you have posted in the past

 Subject: 14 yr old with weight issues?Replies: 32
 Posted By: DianeMcKnightViews: 2,382
 
Quote:
Originally Posted by compmom123
Hey so I'm looking for a little advice on this one. Dd14 is not fat- she weighs 103 lbs and is almost 5"3. She has a bmi of 18.6 However I believe that the 'all dancers must be sticks' idea is getting to her. She has started eating less, and has stopped wearing a sports bra to dance, exercising like crazy, and is always checking calories before she eats anything. A lot of the girls on her dance team are stick thin. Any mom advice on how to stop this before it gets unhealthy/ tell her she isn't fat. Thanks!


That was my dd a little while back. A friend of hers shared personal experiences with dieting and that seemed to do the trick. Maybe you could have your dd reach out to other dancers that dont have that mindset? Or you could talk to her about different dancers such as Kalani Hilliker or famous people who are more thick and muscular, but definitely not overweight. 


I'm sorry for any misunderstanding, but what I've shared was about dd a few years back, while all the girls were still nine-eleven, hadn't reached puberty yet, and all very thin. At that time, she hadn't been diagnosed and for some reason, she thought she was fat. I thought it was just a phase, so stupidly, I didn't do anything to prevent her from trying to diet, as I thought it was healthy if it didn't go too far. After she was diagnosed with CF, we both realized that she was slowly going to become unhealthily skinny if she didn't eat more, and her doctor helped her understand that she wasn't fat. Her friend who had a bit of negative experience with dieting also helped her understand that she didn't need to loose any more weight. Hope this clears it up a bit.






It is very rare for a child to be diagnosed with CF that old. It's is not a "caught" disease but something that they are born with. The majority of people are diagnosed by age 2!! I'm sorry but I'm just not buying this story.

I am not buying this particular story either, but apparently it can be diagnosed in to adolescence. A girl at our studio was tested for it last year and I thought that couldn't possibly correct. However, when I asked my hubby, a MD, he said that yes, it is possible to be diagnosed later on in childhood, not as common, but it does happen.
0
dncemom01

Avatar / Picture

Platinum Member
Registered:
Posts: 1,116
Reply with quote  #12 
Quote:
Originally Posted by 4boysmom
Quote:
Originally Posted by dncemom01
Quote:
Originally Posted by DianeMcKnight
Quote:
Originally Posted by dncemom01
This doesnt fit in with what you have posted in the past

 Subject: 14 yr old with weight issues?Replies: 32
 Posted By: DianeMcKnightViews: 2,382
 
Quote:
Originally Posted by compmom123
Hey so I'm looking for a little advice on this one. Dd14 is not fat- she weighs 103 lbs and is almost 5"3. She has a bmi of 18.6 However I believe that the 'all dancers must be sticks' idea is getting to her. She has started eating less, and has stopped wearing a sports bra to dance, exercising like crazy, and is always checking calories before she eats anything. A lot of the girls on her dance team are stick thin. Any mom advice on how to stop this before it gets unhealthy/ tell her she isn't fat. Thanks!


That was my dd a little while back. A friend of hers shared personal experiences with dieting and that seemed to do the trick. Maybe you could have your dd reach out to other dancers that dont have that mindset? Or you could talk to her about different dancers such as Kalani Hilliker or famous people who are more thick and muscular, but definitely not overweight. 


I'm sorry for any misunderstanding, but what I've shared was about dd a few years back, while all the girls were still nine-eleven, hadn't reached puberty yet, and all very thin. At that time, she hadn't been diagnosed and for some reason, she thought she was fat. I thought it was just a phase, so stupidly, I didn't do anything to prevent her from trying to diet, as I thought it was healthy if it didn't go too far. After she was diagnosed with CF, we both realized that she was slowly going to become unhealthily skinny if she didn't eat more, and her doctor helped her understand that she wasn't fat. Her friend who had a bit of negative experience with dieting also helped her understand that she didn't need to loose any more weight. Hope this clears it up a bit.


It is very rare for a child to be diagnosed with CF that old. It's is not a "caught" disease but something that they are born with. The majority of people are diagnosed by age 2!! I'm sorry but I'm just not buying this story.
I am not buying this particular story either, but apparently it can be diagnosed in to adolescence. A girl at our studio was tested for it last year and I thought that couldn't possibly correct. However, when I asked my hubby, a MD, he said that yes, it is possible to be diagnosed later on in childhood, not as common, but it does happen.


That's why I said it was rare, something about this poster just isn't sitting right with me and i am just not believing her story.  
0
dancermom128

High Platinum Member
Registered:
Posts: 3,631
Reply with quote  #13 

About Cystic Fibrosis

Cystic fibrosis (CF) is an inherited disease that affects the respiratory and digestive systems. CF makes children sick by disrupting the normal function of epithelial cells — cells that make up the sweat glands in the skin and that also line passageways in the lungs, liver, pancreas, and digestive and reproductive systems.

A defect in these cells causes problems with the balance of salt and water in the body, leading it to produce thick mucus, which clogs the lungs, setting the stage for infections and other breathing problems. In kids with CF, this mucus also can prevent the normal absorption of key nutrients and fat in the intestines, leading to poor digestion, slow growth, difficulty gaining weight, greasy bowel movements, and a decreased ability to fight infection.

At the time of diagnosis, the majority of patients have a condition called pancreatic insufficiency. This means that enzymes created in the pancreas that digest fat, starch, and protein aren't properly passed into the intestines. As a result, the body has problems absorbing the necessary amounts of several important nutrients.

By providing good overall nutrition along with extra fat and calories and prescribed enzymes, you can help your child with CF grow healthy and strong.

Clearly, nutrition plays a VERY big part in the treatment of CF. There is no possible way your doctor "doesn't have a preference on what she eats". You're playing with fire and you need to leave.

0
Twinkletoesx2

High Platinum Member
Registered:
Posts: 3,990
Reply with quote  #14 
Yes, I read that 75% of people with CF are diagnosed by age 2 so while it's not as common, it is possible to be diagnosed later.

It's a pretty serious condition, most moms I know would be right on top of the whole nutrition thing, not asking strangers on a dance forum. Why not try a forum for people with CF? When my youngest was diagnosed with Vitiligo, I found a great support forum where I got tons of info. We had to wait 2 months to get her appt with a specialist so in the mean time I did tons of research.
0
Psmom

Avatar / Picture

Diamond Member
Registered:
Posts: 5,790
Reply with quote  #15 
Either your child has been horribly neglected by her doctor or this is all a fraud. Not only should your dd not avoid dairy, she should have extra, full-fat dairy in her diet. Osteoporosis goes along with CF.
0
My2DanceLoves

Avatar / Picture

Diamond Member
Registered:
Posts: 5,410
Reply with quote  #16 
I hate when I post about something I don't know much about and totally get owned by others who do in fact know what they are talking about. 
0
dancermom128

High Platinum Member
Registered:
Posts: 3,631
Reply with quote  #17 
Quote:
Originally Posted by My2DanceLoves
I hate when I post about something I don't know much about and totally get owned by others who do in fact know what they are talking about. 


I know...I hate when that happens.
0
Twinkletoesx2

High Platinum Member
Registered:
Posts: 3,990
Reply with quote  #18 
The jig is up Diane McKnight....
0
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.